tag:blogger.com,1999:blog-655962722302095847.post1749644148313934124..comments2024-03-28T22:33:35.806+01:00Comments on Epiphany: Potassium may play an important role in Autistic BehavioursPeter Lloyd-Thomashttp://www.blogger.com/profile/10173383229834614994noreply@blogger.comBlogger59125tag:blogger.com,1999:blog-655962722302095847.post-51872399616277473672022-03-30T14:44:39.060+02:002022-03-30T14:44:39.060+02:00If Potassium works, but the effect fades too fast,...If Potassium works, but the effect fades too fast, it looks like Ponstan is the next thing to try for misophonia.Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-10890964361313528312022-03-29T23:45:59.417+02:002022-03-29T23:45:59.417+02:00Hi Peter, thanks for the response. Yes i do rememb...Hi Peter, thanks for the response. Yes i do remember that pediatrican comment, which sounded really positive, until i read another user comment further down was saying he starts to get irritable and uncomfortable after missing his schedule by few hrs. Perhaps as you said earlier, just worth a try if my kids misophonia doesnt go away with potassium (so far just 200mg potassium looks promising). <br /><br />so far based on my observations of my daughter and per multiple tests we have done, i think her possible root cause comorbidity seems to be "oxidative stress/gut dysbiosis/EI imbalance".<br /><br />i will keep learning and trying, again to say this blog is and you are amazing. hugely valuable data in one place, hard to get it anywhere else. i am now reading your archived posts :)Timurnoreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-77552012303946667802022-03-28T09:59:25.395+02:002022-03-28T09:59:25.395+02:00Pantogam is the drug which does eventually lead to...Pantogam is the drug which does eventually lead to tolerance issues. Baclofen is safely used by many people with autism.<br /><br />One pediatrician did leave a comment a while back saying that she prescribed it to patients with high functioning autism with no safety/tolerance issues.<br /><br />Some readers of this blog find Baclofen beneficial in severe autism.<br /><br />R-baclofen is again back in research trials for use in autism.<br />Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-6375313398209577312022-03-26T20:13:58.866+01:002022-03-26T20:13:58.866+01:00Hi Peter, after trialing picamilon, with no advers...Hi Peter, after trialing picamilon, with no adverse effect. i have ordered baclogen and pantogam, but didnt go ahead after reading tolerance building effect. i have started potassium citrate (200mg) just once in the morning - think i can positive results. She used to react to her sister's "self-play talk" but not now. I also added Mg L-threonate. And removed Rg3 ginsenoside as it looks to be GABAb antagonist. <br /><br />my current list:<br /><br />pre-breakfast: NAC (600mg)<br /><br />morning: omega3+D, ADHD multivitamin, Mg-Lthreonate, Acetyl-l carnitine, Potasium citrate.<br /><br />after lunch: ADHD multimineral, Broccomax (1 caps)<br /><br />pre-dinner: NAC (600mg) <br /><br />after dinner: Ca-Mg citrate.<br /><br />pre-sleep: mixed with cereal (L-theanine, 20B multistrain probio, PS128 L Plantarum, 299V L Plantarum)Timurnoreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-62144511326728700212022-03-10T12:23:38.581+01:002022-03-10T12:23:38.581+01:00I have difficulty eating solid foods because of th...I have difficulty eating solid foods because of the increased visceral sensation, many foods make me manic, I often have episodes of hallucinations after meals, the first thing doctors and people said to eliminate from the diet was gluten and milk, but without success . My biggest offenders are animal proteins, it seems like I'm overdosed on some potent stimulant after eating, I always regret after eating meat because it's 10 minutes of pleasure that turn into torture for the next few hours.. Looking at this post, I practically don't ingest potassium , I will eat more bananas and avocado and wait for the results.Imselfhttps://www.blogger.com/profile/06524460039644958929noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-49728573963031955112021-02-14T17:50:54.583+01:002021-02-14T17:50:54.583+01:00Julie a quick increase in potassium from a supplem...Julie a quick increase in potassium from a supplement does seem to provide a short-term benefit from sensory sensitivity. I used 200mg of potassium. A banana contains about 800mg of potassium, but it is released very slowly as it is digested, so it has no effect.<br /><br />The real story is more complex and seems to include HCN channels, which are affected by potassium among other factors. <br /><br />Blocking HCN channels seems to resolve Misophonia, when people are disturbed by specific repeated sounds (a noisy clock, someone sniffing, eating loudly etc).<br /><br />OCD is slightly different. I think a person might express their reaction to sensory sensitivity via aggression and in another person it is via OCD.<br /><br />In adults, the interesting treatment to block HCN channels is 100 mcg of a drug called Roflumilast/Daxas. A similar effect on HCN channels is also possible using nicotine, but nicotine also has negative effects. Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-23159263474423023482021-02-14T15:11:29.879+01:002021-02-14T15:11:29.879+01:00Dear Peter, I tried giving my son potassium to hel...Dear Peter, I tried giving my son potassium to help with his mild sensory/OCD issues. I started with 13 drops (40mg) of Bodybio (potassium phosphate) in 100ml of water. Seeing no change, I decided to double the amount the following day (26 drops - 80 mg) but given that this is still low, I gave it to him right after his usual banana in the morning (which presumably is slow release). In a question of minutes he had a very bad OCD episode (meltdown because he had messed the pieces of a completed rubik's cube). It was very interesting to see that the imbalance of K seems indeed to be at the root of his issues, but for some reason we got more rather than less OCD. Was it that I built it up too quickly (given the banana)? Or the fact that it was potassium phosphate (didn't find anything about this in the blog). Should I have added Mag? I would appreciate your thoughts. It would be great if we tackled the sensory issues. Many thanks again so much. Juliehttps://www.blogger.com/profile/03828932022277070637noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-92217315310740387392018-04-30T22:26:50.975+02:002018-04-30T22:26:50.975+02:00I wish I could give potassium supplements to my so...I wish I could give potassium supplements to my son. He has serious gastric pain, and potassium could aggravate it:<br />https://www.ncbi.nlm.nih.gov/pubmed/3698061<br />https://www.ncbi.nlm.nih.gov/pubmed/6734038Luishttps://www.blogger.com/profile/15511835233235446508noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-39194002960843828882018-03-09T19:45:13.216+01:002018-03-09T19:45:13.216+01:00Maja, the "autism dose" of clonazepam is...Maja, the "autism dose" of clonazepam is tiny, 0.03mg in someone of 55kg. I have no doubt that at 1 or 2 mg clonazepam can cause dependence, but there have been no side effects after 3 years on the tiny dose. It is only the tiny dose that modulates the alpha 3 subunits of GABA receptors.<br />Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-32491167407223455962018-03-09T17:48:26.752+01:002018-03-09T17:48:26.752+01:00I started taking 600 milligram potassium gluconate...I started taking 600 milligram potassium gluconate per day in order to combat my Premenstrual Dysphoric Disorder. My bloating, constipation and breast pain went away. Also I discovered I no longer experienced attention deficit. How great is this?Majahttps://www.blogger.com/profile/00592622763337260611noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-23497298949723977262018-03-09T17:35:17.415+01:002018-03-09T17:35:17.415+01:00Clonazepam is the most addictive medicine there is...Clonazepam is the most addictive medicine there is. Please be careful.Majahttps://www.blogger.com/profile/00592622763337260611noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-39914397025684257652018-01-04T04:44:50.483+01:002018-01-04T04:44:50.483+01:00Sorry about the links---you'll have to cut and...Sorry about the links---you'll have to cut and paste the tinyurl into a new page.Silverseashttps://www.blogger.com/profile/17143305429687501870noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-54599918358400631032018-01-04T04:43:14.290+01:002018-01-04T04:43:14.290+01:00I've been taking an electrolyte product called...I've been taking an electrolyte product called: Electro Mix by the Emergen-C company. https://tinyurl.com/y8m7uzwz<br /><br />Here's the ingredient list: https://tinyurl.com/ybnwxu7w<br /><br />I've been taking about 9 pkts./day ---I need the electrolytes while I am on a Ketogenic diet. These packets give me quite a lot of potassium which my body/mind really like. <br /><br />It's available directly from the Emergen-C website as well as Amazon. I buy a case at a time. It's been very useful. Silverseashttps://www.blogger.com/profile/17143305429687501870noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-70667230263015974072018-01-04T00:00:01.816+01:002018-01-04T00:00:01.816+01:00Thank you Peter.I can't get just the Magnesium...Thank you Peter.I can't get just the Magnesium pottassium supplement/effervescent anywhere.I can't even find ones with lower doses to make up.This was the closest in mg I could find and I've been looking for 3 weeks.Ill return it.If anyone can direct me to a supplier I'd be most grateful..my son's anxiety is escalating daily.Soniahttps://www.blogger.com/profile/13325394266995998037noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-55272131552416938412018-01-03T17:10:06.008+01:002018-01-03T17:10:06.008+01:00Maybe that's it aspie - my son tolerated potas...Maybe that's it aspie - my son tolerated potassium bicarb better but could be due to histamine issues hisstomach acid was higher. Or he just needed bicarbonates. However I think my stomach acid was fine and I noticed with potassium bicarb, it just felt better. Worth a try regardless - maybe best taken away from meals just in case. ? Tanyahttps://www.blogger.com/profile/01489962611979985947noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-47523395827699576122018-01-03T16:51:58.233+01:002018-01-03T16:51:58.233+01:00That strongly depend if someone has an abundance o...That strongly depend if someone has an abundance of stomach acid or is actually low in hcl.Aspie1983https://www.blogger.com/profile/14186355234793738967noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-33519011018386905372018-01-03T16:45:56.906+01:002018-01-03T16:45:56.906+01:00Sonia and Peter, you can also find potassium bicar...Sonia and Peter, you can also find potassium bicarbonate on amazon - this version has the added benefit of being easy on the stomach. Tanyahttps://www.blogger.com/profile/01489962611979985947noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-81889567642260692252018-01-03T08:10:59.193+01:002018-01-03T08:10:59.193+01:00Sonia, in the US you can buy a powder version of p...Sonia, in the US you can buy a powder version of potassium citrate. This looks to be the closest thing.<br />Now Foods, Potassium Citrate Pure PowderPeter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-48959727120688586342018-01-03T02:51:52.201+01:002018-01-03T02:51:52.201+01:00Thank you Peter.I can't get just the Magnesium...Thank you Peter.I can't get just the Magnesium pottassium supplement/effervescent anywhere.I can't even find ones with lower doses to make up.This was the closest in mg I could find and I've been looking for 3 weeks.Ill return it.If anyone can direct me to a supplier I'd be most grateful..my son's anxiety is escalating daily.Soniahttps://www.blogger.com/profile/13325394266995998037noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-20460553331455391902017-12-28T08:42:27.520+01:002017-12-28T08:42:27.520+01:00Sonia, this supplement has many ingredients, so yo...Sonia, this supplement has many ingredients, so you will not know for sure what is causing any effects that it produces. Some people respond badly to calcium supplements for example, others do well with Inulin. Even Zinc can be good or bad.Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-49104500484867732132017-12-28T02:31:45.437+01:002017-12-28T02:31:45.437+01:00Hi Peter
Could I ask if this Alkaline supplement i...Hi Peter<br />Could I ask if this Alkaline supplement is ok to use? My son is 9 and weighs 115lbs. He is very robust, muscular and heavy from trampolining for many years.I will start with a small dose and buil up to match your 250mg twice a day if needed.My son isnt on any other drugs but we are currently trialing Charlottes Web CBD oil to help his anxiety.The ingredients follow:<br />Each serving contains (10g=1 measuring spoon):<br /><br />0g Protein<br />2,8g Carbohydrates<br />0g Fat<br />3000 mg Fructose<br />2000 mg Inulin (prebiotic fiber)<br />500 mg Potassium<br />300 mg Calcium<br />200 mg Magnesium<br />50 mg Silicium<br />5 mg Zinc<br />2 mg Manganese<br />1 mg Iron<br />0,8 mg Vitamin B2<br />0,5 mg Copper<br />50 mcg Molybdenium<br />50 mcg Chromium<br />30 mcg Selenium<br /><br />Many Thanks Soniahttps://www.blogger.com/profile/13325394266995998037noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-82531049184551371482017-05-19T01:55:53.012+02:002017-05-19T01:55:53.012+02:00I have noticed this and I still have some cytra-k ...I have noticed this and I still have some cytra-k packets. My son was severly damaged by depakote and I was prescribed cytra k and L-carnitine. The carnitine was for the hyperammonia blood and the cytra k was for the treatment of metabolic acidosis. It was a nightmare for him and caused dysfunction and cognitive delay. I have long since discontinued the depakote and have extra Cytra-K. <br /> Occassionally I give him half of a packet with some himilayan salt when he is dehydrated. I have had him off the depakote over a year now and his hair has been growing back, nails are thicker and he is responsive to his environment, much healthier than he ever was. He sweats a lot, pees a lot, and drinks a lot from the ketogenic diet. When it is hot it is worse. This salt and the potassium he loves. I just don't overdue it because I don't want a cardiac issue. Honestly wish it was nice all of the time and sunny and I did not have to go through harsh winters out here. He does a lot better when he we have sunlight. The vitamin D is a big deal for him. Thinking about moving.....He has far fewer seizures when there is sun. Quality D3 with K2 is not the same, neither is cod liver oil. The sun really makes a big difference. I have pretty severe ADHD and hyperfocus on many sciences and our son has symptoms of ADHD and Autism. Potassium seems to be a help in our family.<br /><br />I use Kiwis too they seem to help.<br /><br />I make a lot of foods with Avocado products and it seems to help. I use the Avocado and I use Avocado oil. <br /><br />I am currently interested in the Patricia Kane protocol because balanced fat ratios seem to make a noticeable difference. I sense with my son I have some pathological autoimmune syndrome that is attacking membranes and possibly myelin. I cannot get a referral for an immunologist. I cannot go off of the ketogenic diet for him because when I try functioning, focus, hyperactivity, and seizures are worse. He is on a different type of keto diet that also helps with inflammation that I have created for him based on a lot of observations and research. <br /><br />We have no history of phenol allergy in our family and yet suddenly our son has this phenol allergy. There are products that are supposed to help with those kinds of things but honestly I still give phenols but control the inflammatory response. This seems to help and allow him some enjoyment. There is no anaphylaxis risk.<br /><br />Depakote decreases folate. Retorical Q: Why is this not a good idea?........<br /><br />The miRNA profiles of the brain of infants is altered from aluminum, mercury, and medications. Psychotropic medications specifically Haldol, lithium, and Valproate induce changes in the miRNA profile in the brain. <br /><br />These are strong substances and we need to re-think the use of them. miRNA plant sequences can transfer into our physiology. I was told by a geneticist that food is not medicine....This is so far from being true. I am sick of the marketing, I am sick of the meds, I am sick of the outcomes of taking care of sick people indoctrinated to believe that these pharmaceuticals are there only hope and that nothing else will work. I do not entirely discredit them but they are over-hyped in the US and marketed all over TV along with vaccines. They use healthy people to advertise all of these drugs and the reality is if you actually take care of these people you will see how much is really going on.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-70912045708684310532017-02-14T21:07:21.267+01:002017-02-14T21:07:21.267+01:00I use a French supplement (Biofar) that has 500mg ...I use a French supplement (Biofar) that has 500mg of potassium and 150 mg of magnesium. This would be illegal in the US, where 100mg of potassium is the limit. Peter Lloyd-Thomashttps://www.blogger.com/profile/10173383229834614994noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-85973067808722519252017-02-14T16:47:45.470+01:002017-02-14T16:47:45.470+01:00Avocados have 1068mg per whole avocado. If RDA is...Avocados have 1068mg per whole avocado. If RDA is that high you might need supplement. What kind of efferfescent do you use? Cytra-K was not pallatable for my son when we tried that and I did not like the sorbitol reaction. Never Give Uphttps://www.blogger.com/profile/02812381930735127144noreply@blogger.comtag:blogger.com,1999:blog-655962722302095847.post-38523856602794956712017-02-14T16:05:12.258+01:002017-02-14T16:05:12.258+01:00I enjoyed listening to those presentations in rega...I enjoyed listening to those presentations in regards to aluminum. The silica has to be in the correct form to work as well. It is difficult to attain the water he speaks of. So I was researching it and came across CSA 28 used for growing marijuanna and I wondered what it was composed of and whether or not it would work as an agent to eliminate the aluminum but I want elimination to be safe. Either envelope and eliminate the metal or create something to bind to it that won't attach to something else and cause a problem. Never Give Uphttps://www.blogger.com/profile/02812381930735127144noreply@blogger.com