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Wednesday 26 September 2018

Back to School and Try to be Cool


The Milaneses and their shops
                                             
Another school year has begun, which is always a good time for Monty, with ASD now aged 15. He loves his small international school; he has been there since was 3 years old. School is fun because he gets lots of attention and stimulation. Other children are surprisingly nice to him and the teachers get to meet someone with autism.

In kindergarten and the early years of primary/junior school boys with autism often get taken care of by some of the nicer girls. It is like having a live human doll to mother. It is amazing how this pattern repeats among different children with autism. This gradually seems to fade away as girls discover that they need to be cool and kids with special needs tend not to be cool.

We had a visit over the summer from a Dutch girl who was one of these nice little girls when she was younger. Now she is also 15 and has not seen Monty for a few years. The difference between them now is much starker than 10 years ago, but there still is a bond.
Last year at school for friendship development day they had to climb a small mountain, this year they went bowling. The girls in the year above wanted to teach Monty how to bowl and they did. The year above is unusual in being mainly girls.
I know that most children with autism/Asperger's cope with junior school but many, particularly Aspies, really hate high school, because they do not fit in and so they get bullied. Monty has never experienced any such problems, but he is not an Aspie, so he is not a target.  People who are a tiny bit different get bullied, people who are more different tend not to get picked on.
Big brother has graduated from high school and gone to University in Milan, Italy, far away. In his time at school the class were not so nice to the Aspie boy they had in their group and he was not nice to them. I think it was a lost opportunity; ultimately it is up to parents to make things happen.  Parents often blame schools, but most schools have no expert knowledge and have many other issues to deal with. Much more could be done to integrate those who are just a tiny bit different.
I think that to fit in, the special needs pupil needs to be “cool” and have an assistant who is seen by the class as “cool”. What counts as cool? How you dress, sport you do, musical skills etc. For the assistant it includes how old you behave; having an Assistant who behaves like a 50-year-old, is not going to help integrate a teenager.
Most kids figure out what is cool, but if you have any degree of autism you may not. I think some people would indeed benefit from “cool lessons”, you could call it “how to be a teenager”. There are workshops for Aspie teenagers, a little bit like this. 
In our household this new school year is much more about big brother. We have lots of video calls about Italian bureaucracy, how to cook, how expensive going out is, but how cheap Italian coffee is (no Starbucks).  Overall Milan is beautiful city, full of very fashion-conscious people who do seem to enjoy life.  The Italian students in class can be identified by their expensive sunglasses and their going for “aperitivo”.  The foreign boys are going for birra, bier, pivo, bira or cerveza, which is cheap in a supermarket but very expensive elsewhere. 
Bocconi is Italy’s top University for economics; it seems pretty well organized and is very inclusive. They have many students from poorer countries, who get substantial financial support from the University, which is the opposite of what happens in England (where foreign students face paying up to 3 times more for tuition). Germany is also good in this regard, where even Medical School is free to all, but you do need to learn German. Big brother is getting to practise his foreign languages, but tuition is in English.


   

10 comments:

  1. Hi Peter,I remember a girl of level 5 that with 5 years old was the perfect assistant, incredible how she took care of him during the shool days ; one day at home, she sat next to him very determined in front of TV, grabbed his hands and began to play Wii,so he learned to play Wii. I guess all the special girls of the world are the same. I think that my son has a cool autism profile that will help him later! My hole family is italian, my mother came here from a very young age, you couldn't have chosen a better place for your son to study.
    Valentina

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    1. Mine is a girl :-). She adores older boys but mostly they will provide some leadership in games and thats that. We were lucky to have a mothering girl 2 years older, in her kindergarden. Sadly the girl is now in school but it was a great introduction to the education system, easing her way in.

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  2. Latest addition to articles on KCC2:

    "data presented here demonstrate that ANA12, a small-molecule TrkB antagonist rescues PB-refractoriness and KCC2 hypofunction by reliably and significantly reversing ischemia induced TrkB-pathway activation at P7 in a dose-dependent manner."
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6086916/

    /Ling

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  3. This comment has been removed by the author.

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  4. Hi, Peter and all.
    Please, how much potassium (mg) should I give to my boy (doesn't take many potassium in food) if he is taking Bumetanide 1 mg, twice a day ? Thanks !

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    1. Luis, people vary greatly in how much potassium they lose with bumetanide and some people start from a low level due to their diet. So at some point you will need to make a blood test and measure potassium.

      Most people seem to give about 200 mg of potassium per 1 mg of bumetanide. Potassium supplements are absorbed in 10-20 minutes whereas potassium in food is absorbed slowly. You can also add potassium to food to slow absorption, if your son does not like bananas. It is dangerous to give large doses of potassium supplements, because a sharp rise in blood levels will affect how your heart functions.

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    2. Is that 200 mg two times a day then in the case you give 1 mg of bumetanide twice a day?

      /Ling

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    3. Ling, that is correct. Note that a small minority of people need much more potassium and that is why a blood test is needed.

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  5. Here is some new research which shows a more elegant intervention at fixing some types of hyperactive serotonin transporter issues that seem to be far more elegant and safer than the use of SSRI's which completely block the serotonin transporter protein:

    Press Release:

    https://www.sciencedaily.com/releases/2018/10/181008183411.htm

    Paper:

    http://www.pnas.org/content/early/2018/10/03/1809137115

    This researcher happens to also be the first researcher to clone the serotonin transporter gene SERT over 25 years ago and has been studying its effects in autism since 2005. His new research suggests that by suppressing the p38α MAPK pathway, serotonin transporter hyperactivity can be normalized which would be far superior to a hard block on the protein which is in effect what SSRI's do.

    Also, fortunately a drug already exists which achieves this goal via progress in Alzheimer's drug development from a totally different research group. Obviously, this exciting research may spur the development of even better and safer drugs that go beyond their Alzheimer's experimental drug called MW150. In the meantime, this research suggests that in some autisms, methods of inhibiting the p38α MAPK pathway, or else employing interventions which limit its activation might be an area to concentrate on.

    And for anyone interested in the p38α MAPK pathway, this might save you some time hopping along the hyperlinks:

    https://en.wikipedia.org/wiki/MAPK14

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    Replies
    1. Tyler, that is very interesting. Hopefully MW150 will get approved as an Alzheimer's drug. Then it might be re-purposed for other conditions.

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