An AI assistant with an EpiphanyASD research memory and
perspective
The Copilot combines your AI's general
reasoning with the knowledge accumulated from the EpiphanyASD blog and book
Game Changer, reader experiences and research hypotheses. The more extensively
a subject has been explored in EpiphanyASD, the more additional context and
perspective the Copilot can potentially bring to its answer, while current
scientific literature can be used to test and challenge those ideas.
Areas such as summertime raging in
autism or bumetanide use can therefore produce a much richer response than a
standard AI. For simple technical questions, however, the Copilot will give a
very similar answer to ordinary AI.
Public-facing AI is deliberately
conservative when it comes to health topics — for good reason. But that same
caution means it is not well placed to weigh the cost of doing nothing for
someone with severe, treatment-resistant symptoms, which is a judgment call
only a parent or clinician close to the situation can really make.
The Copilot does not remove any of the
AI's built-in safety behavior — it still will not, for example, tell you to
start, stop, or adjust a medication. What it adds is the accumulated
EpiphanyASD context, so the AI's caution is better informed rather than
reduced. There is not going to be an AI autism doctor app.
The Copilot is portable and
reproducible. It is not a proprietary black box—you have the knowledge base and
the instructions, and can recreate it in a compatible AI of your choice.
The EpiphanyASD knowledge stays
separate from the AI model, so as AI models improve, the same knowledge base
can potentially be used with them.
In simple terms:
EpiphanyASD provides the memory and perspective; your chosen AI provides the
reasoning.
How to use the
portable Copilot
The Copilot has been tested
successfully with ChatGPT and Claude. Other AI platforms may have different
file-handling and knowledge-retrieval capabilities; Gemini was not fully
compatible.
You do not need a paid AI account to
use the Copilot, although free accounts may have usage limits. You can ask
questions in any language.
Step 1: Download
the two files
Click each link below to open it in
Google Drive, then click the Download icon (the small downward arrow near the
top right of the screen) to save the file.
1. The
Knowledge-Base File:
EpiphanyASD_Knowledge_Base_v0.4.2_COMPLETE.zip
2. The
Instruction File:
EpiphanyASD_Research_Copilot_v5.4_Instructions.txt
If you are using a PC, the files will
normally appear in your Downloads folder. You do not need to open or read them
yourself.
On a phone, the files will normally
appear in your device's Files or Downloads area. If you are not sure where they
went, search your Files app for the filenames.
Step 2: Upload
both files to your AI
1.
Open ChatGPT or
Claude.
2.
Look next to the
text box where you type your prompt for the + (plus) icon or Paperclip /
Add file button.
3.
Upload both
downloaded files into the chat.
Check that the
knowledge base was actually loaded
The Copilot is designed to check
automatically whether it can access the knowledge base.
If you are unsure whether it has
worked, ask:
“Initialize the
knowledge base”
The AI should tell you what material
it has actually been able to read.
Depending on your own settings,
ChatGPT or Claude might not open the ZIP file, but should do when you ask
directly. Otherwise extract the ZIP on your computer or phone and upload the
individual files inside it instead, together with the instruction file.
Step 3: Start
asking your questions!
Once the knowledge base has been
successfully accessed, simply ask your questions as normal. Once it is loaded, you can ask as many
questions as you like.
If your question relates to topic
areas, reader experiences or hypotheses covered extensively by EpiphanyASD, the
AI can draw on that research base while providing broader scientific context
and, where appropriate, using current scientific literature to test and
challenge those ideas.
For simple technical questions, it
will behave much like an ordinary AI.
Important: The Copilot is specific to the chat in which
you uploaded the files. When you start a new chat, simply attach the two files
again to recreate it.
What can it do?
For longtime users of the blog, it
should be amusing because the Copilot can reference long-forgotten comments.
For example:
“What did Tyler
write about BCAAs?”
Clever guy, that Tyler.
Not only can you recover Tyler's
reported treatment for self-injury, the AI can explain the proposed mechanism
and identify other reader experiences associated with the idea. What more could
you ask for? All without searching throughout the blog.
Or ask:
“What did Seth
Bittker write about in the blog and later publish?”
He certainly has been busy.
You can get a summary of Seth's online
autism activities and his publications.
That is the point of the EpiphanyASD
Research Copilot: instead of searching through years of blog posts and comments
yourself, you can ask your AI a question and let it search the accumulated
EpiphanyASD knowledge for you. And as a bonus, it can add context from the
wider scientific literature, helping to test and challenge the ideas found in
the EpiphanyASD material.
Does paying for
AI make a difference?
Our initial testing suggests that it
can. We tested the EpiphanyASD Research Copilot on paid and unpaid versions of
ChatGPT and Claude using natural questions about autism, self-injury and
prognosis. The paid versions generally showed stronger evidence synthesis and
calibration, with paid Claude performing best in our initial comparison and
paid ChatGPT close behind. The free versions were still useful, particularly
for retrieving relevant corpus material, but were somewhat more likely to make
confident interpretations without equally strong evidence qualification. This
is an early, informal comparison rather than a controlled benchmark, so we
regard the result as provisional rather than proof that a paid AI will always
perform better.
What makes the
Copilot different from simply asking an AI about autism?
A general AI starts with its general
training and whatever current sources it can access. The EpiphanyASD Copilot
adds a separate, structured research layer containing the EpiphanyASD blog,
Game Changer book, reader experiences, source/provenance information and
selected reference material.
This matters because much of the
EpiphanyASD material consists of observations and hypotheses that are scattered
across many years of writing and comments. The Copilot can retrieve that
material, identify who reported what, distinguish a personal experience from
published evidence, and then use current scientific literature to test or
challenge the interpretation.
For our very
computer literate readers
Some readers have been doing clever
things like reanalysing genetic testing results.
My Copilot project started out as a
custom GPT that could be shared with ChatGPT users, including those with free
accounts. That was quite quick to set up, but sharing was automatically blocked
because the GPT is health-related.
So I decided to make the Copilot
portable instead. If you have a paid ChatGPT or Claude account, you can very
easily create your own custom version using my knowledge ZIP file and
instruction file. Then you have it permanently available without uploading the
files for every session.
You can also adjust the instructions
to suit your own taste, or add your own knowledge files.
One practical
tip: if you build up a huge thread of questions in the portable version, the AI
may gradually lose track of the knowledge base. If that happens, refresh it by
re-uploading the files or starting a new chat.
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